Boston Update YAAAAYYYYY!

hey all!

sorry I have been gone for so long, it's been a very rough few weeks. FIRST: Boston

Boston went very well, we got in on Wednesday night the 6th of July. We took a cab to our hotel room and checked in at the Westin Copley. We were on the 34th floor, gorgeous view! I already knew I was in love with Boston, from just the taxi ride and now the hotel view.

Thursday morning my mom and I woke up and met up with my friend and her daughter for the duck boat tour, which was amazing. (I recommend it to everyone whether you live in/nearby or are just visiting). after the duck tour it was time for my mom and I to head back to the hotel and rest a bit before my big appointment.

We left for Mass General Hospital and took a train (thanks to a friend online, who told me about the exits I knew it was 3 stops!) Alex had been out all day taking the trains and mastering public transit -which we have none of here unless you include busses and light rails which run in squares every 20mins.  We stopped for lunch at this super cute bakery and it was seriously the best sandwich I ever had. (even kept the receipt so I know my order forever so when I go back for treatment lol). after we ate we walked across the street to Mass Gen to the Yawkey building and went to my appointment.

the doctors I met with discussed treatment plans and it was decided right there in the room that I would not have another surgery. My neurological skills right now are fine and it wouldn't and couldn't be guaranteed that another surgery couldn't cause more damage. I am beyond thrilled about this because so far I have had 2 surgeries and while yes they made me walk again and have some use of my right arm, they also caused me more pain.

We left off with the team of doctors would be discussing me at their weekly meeting (on 07.15)  as far as how and when to do radiation. We are still waiting to hear back from the doctors, but hopefully soon.

The next day, Friday the 8th I woke up shivering and shaking uncontrollably. I was so cold for about an hour after waking up and in so much pain. I didn't know if I had done too much from the day before or what. I laid in bed for 4 hours until it was time to get up and go to my appointment with the pain management specialist. Back to the Yawkey building.

I sat in the office feeling  just horrible, but luckily I was at a hospital so I had a wheelchair I could sit in and didn't have to walk. I was also on the cancer floor *maybe the Yawkey building is the whole cancer building?* with a name tag on, it was nice to not be questioned why I was in a wheel chair. We met with the doctor who changed my dosages around and since it was raining took a cab back to the hotel where I went back too bed


Saturday morning early morning I woke up sweating and feeling like my  chest was being hit with an ax. I couldn't breathe and it was nothing like an asthma attack (I have asthma as well -lucky me). I finally fell back asleep and when I woke up I was freezing again. We got a late check out and the hotel let my mom and I borrow a wheelchair so we could go through the hotels indoor shop to the "fancy" mall so I could get the kids some Boston stuff. I hurried and got the perfect gifts for the kids because my mom and I  wanted to go to the library (which was right across the street from our hotel). after 30 mins of getting the gifts (and a new clutch for me) I was too wiped out to do anything but go to the airport.

My FIL has made "that"  person who needs to be at the airport checked in and waiting 3 hours early. So my mom and I arrived at 2pm for a 6:45 flight. ...great. we walk in and I feel like I am about to pass out so I find a sky cab and say I need wheel chair assistance. He's kinda rude, my mom doesn't take it well. I find my own wheel chair and  my mom waits in line to check in and check our bags. She talks with the manager and we get our seats switched to Row 1 Seats window and middle (which is  awesome for me and my mom). now we have a 4 hour wait and I feel like I am dying.

Our flight lands at 9pm Phoenix time, we FINALLY made it home! It took forever for our bags to come. keep in mind I had to wait for a wheelchair and to be pushed down to the  baggage area. After 25mins of waiting my moms bag comes and another 5mins my bag. woohoo time to go. we go outside but it looks like my father (who was picking us up) had to move. stupid sky harbor cops it wasn't busy and he told them his situation! they saw me pushed out in a wheelchair so I hope they knew he wasn't lying. he got us and I thought all was good.

of course we don't even get out of the  airport and someone hits us! WTF?! I just want to get home. I feel like utter crap, just traveled for 8 hours and I need sleep. Cops called, it's agreed that there's no damage done besides my neck hurting more (duh! I have neck problems!! I felt bad for the other guy, last thing you wanna do is hit someone like me in the car!)

Sunday I felt horrible and slept all day long. But I had promised my mom I would go to urgent care. So we made an appt for 4pm. I went and had a temp of 105. They did a chest x-ray and my entire right lung and some of my left lung was full of pneumonia. I was sent straight to thee hospital. It took 3 days for the pneumonia to stop spreading and I slept all day and night until Thursday. On Thursday I was taken for a cat-scan and both lungs were filled with pneumonia. Friday night I was released from the hospital.

It's been a week now and I am just starting to feel better. My son Thane, turned 2 last Sunday (the 17th) and we are having his birthday party tomorrow!  It's been a very crazy  and trying month, I  know it's long and I know it took a while but there's my Boston trip (in a nutshhell) :op

here's hoping for a better august!

xoxo
kayla